Chances are you have encountered a young person who has Attention Deficit Hyperactivity Disorder (ADHD). In the early 1980s, ADHD was deemed the culprit for anyone, aged 3-18, who showed signs of hyperactivity. In recent years, the defining symptoms have increased, and they are not unlike those of other pediatric mental disorders. Doctors say the ambiguity of symptoms makes it difficult for  to provide a proper diagnosis without a systematic trial-and-error process.

One north Texas caregiver shared her experience with ADHD. After her teenaged niece was suspended from several schools in her hometown, Lynn Jay was granted guardianship.

“It was a lot,” Jay said. “And as she [Jay’s live-in niece] got older, it [behavioral problems at home and school] actually progressed and got worse. It affected my entire household in many, many ways.”

Like many other parents and caregivers, Jay and the teen she cares for fell victim to a broken mental health system.

“The initial visit probably took 20 to 30 minutes to get all the paperwork done and speak to somebody [not a doctor],” Jay said. “That was just sending in the paperwork.”

Spending half an hour filling out paperwork that would be faxed or mailed to a physician was just the beginning of the process.

“After I got an official diagnosis [ADHD], then it was up to me to find a psychiatrist that would actually treat her,” Jay said.

With no referral or advice on where to begin, Jay started her search. But, beginning treatment did not offer the solace this north Texas family had hoped for.

“The medication was making her zombified,” Jay said. “She was always just—out of it, in a different place. I just really hated seeing her like that.”

Finding a psychiatrist whom she trusted and her niece felt comfortable with was a tedious process. During the search, Jay said she felt as though her family member was a test subject.

“They [the psychiatrist] changed her medication a few times,” Jay said. “And then, her body pretty much became immune to it [various medications] until they eventually changed her medication to one that was time released.”

Getting the right medication and dosage was a long, hard fight. The process was sometimes dehumanizing.

“She was admitted into Millwood Hospital, and I felt bad because it was almost like she was being sent off to prison,” Jay said.

Millwood, best known for crisis intervention, seemed to have some trouble with proper dosing also.

“During the visits, I’d have to go and speak with the doctors because it was clear that her medication was too high,” Jay said. “She was highly educated [but] it was very difficult to speak to her because she was so zoned out.”

Jay’s family member is one of more than 5,000,000, according to the National Health Interview Survey, affected by ADHD. And, she is not alone in her battle to find adequate medical treatment. The National Alliance on Mental Health (NAMI) says resources aren’t always available.

“States have cut vital services for tens of thousands of youth and adults living with the most serious mental illness. These services include community and hospital based psychiatric care, housing, and access to medications,” NAMI reports.

In some cases, the results of the deficiency have been fatal.

“These personal tragedies [‘suicides, homelessness, incarceration, school dropout and more’] also occur because of our failure to provide access to effective mental health services and supports,” NAMI reports.

In order to compensate, Jay sought alternative treatments for ADHD. By researching treatment alternatives, Jay has learned some effective techniques, such as art therapy and horseback riding, that have worked for her loved one. Her advice to other parents and caregivers is to do plenty of research.

“Do a lot of research on what they’re being diagnosed with,” Jay said. Try a method where you don’t have to give medications. If you can just keep them busy and focused, sometimes, you don’t have to use medication.”

Editor’s note: The name of the individual in this story has been altered to protect her identity.

Previous post

Richard Sherman interview cartoon

Next post

Wesleyan library gives hope to less fortunate

Paula Justice

Paula Justice

3 Comments

  1. Elly Bontecou
    February 5, 2014 at 8:03 pm — Reply

    We are using Play Attention with our tike with total success. This person is correct we as parents, are our child’s biggest advocate and we have to do the research to find what is best for us. We dismissed the medication because we felt he was too little and we are extremely happy with out decision. Tufts just did a study of which this company was part of the control group and proved out their efficacy. Here is the study: http://www.playattention.com/wp-content/uploads/2011/04/Neurofeedback_and_Cognitive_Attention_Training_for-ADHD-Steiner-2014.pdf. Our new motto: WE CAN CHANGE OUR MINDS.

  2. Lapinta59
    February 6, 2014 at 5:05 pm — Reply

    We used Karate, soccer, and later mountain biking and running as outlets for our son and his energy. Karate was probably his favorite and running he does to this day. Drugs, we did not feel were an option, so we utilized Tea and breaks to help keep our son focused on homework. Once he became an adult our son did try the ADHD drugs but did not like the way he felt and his friends remarked that he was not the same energetic person as before. It’s hard cycle through the drugs and it takes patience. It also takes perseverance from the parents as you find other methods that work for your children. The goal has to be long term, in order to find long term coping methods for helping children re-center & support themselves throughout their lives and in all kinds of circumstances. ADHD is a difficult journey and it takes committment and understanding. It can be exhausting but rewarding and more families need to educate themselves on alternatives for drugs, therapy, and other coping tools.

  3. Paula Justice
    February 25, 2014 at 11:31 pm — Reply

    Thank you all for your comments and for sharing your experience(s) and personal solution(s). I hold fast to the belief that it takes a village to raise a child, and by sharing, you all have become a part of someone’s village; even if you don’t know them personally.

    Amelia, this story is not based on my personal experience; however, in my research I have learned and subscribe to the notion that diet certainly does have an effect on mental health and overall balance. As I am not a medical professional, I suggest consulting with your doctor and then seeking a second opinion without sharing the response of the first physician. In that, you may be able to pen-point specific dietary items that need to be eliminated rather than trying to change an entire diet. Since diet is an interest for you, you may even consider a holistic physician.

Tells us what you think

This site uses Akismet to reduce spam. Learn how your comment data is processed.